Caregiver and Support Links
If you are married to, the parent of, or living with a brain tumor patient, then you are a caregiver. You may not even realize that you are a caregiver, because 100% of your focus is on your loved one, the brain tumor patient.
Caregivers
Cancer Care
This national non profit organization provides free professional help to people with all cancers and their families through counseling, education, and financial assistance.
Cancer and Careers
This site provides support and resources for caregivers and cancer patients on how to balance the demands of fighting their illness with the demands of their careers. Although the site is geared for women, it is very informative for all people who are trying to maintain a career while they or someone they love is fighting cancer.
Family Caregivers Alliance
An information center for Factsheets on Caregiving, Brain Tumor Fact Sheet & Overview, Online Support Groups for Caregivers
The University of Texas MD Anderson Cancer Center: Brain & Spine Center
See especially Brain Cancer and Treatment Information and Life After Cancer Care.
Support
Meningioma Mommas
A Highlands Ranch, CO-based nonprofit organization, which provides national and international meningioma support with a commitment to raising funds for meningioma specific research.
Patient Advocate Foundation
This non-profit organization serves as a liaison between patients and their insurers, employers, and creditors to ensure access to care, maintain employment and financial stability during a health crisis. The site includes a state by state resource guide with information about housing, utilities, food, medical treatment, home health care, medical devices, and pharmaceuticals. Also, there is state by state information on the appeals process if your insurer is denying coverage, as well as information on the Family Medical Leave Act and disability laws.
Patient Support Groups
Patient Support Groups: links and resources from the National Institutes of Health to help you find support groups.
The Wellness Community
The Wellness Community is a national nonprofit organization that provides support, education and hope to people with cancer and their loved ones - all programs are free of charge. Through participation in professionally led support groups, educational workshops and mind/body classes utilizing the Patient Active Concept, people affected by cancer learn vital skills that enable them to regain control, reduce isolation and restore hope regardless of the stage of disease. Most importantly, The Wellness Community provides a home-like setting for people fighting cancer to connect with and learn from each other.
Financial Help
The University of Texas MD Anderson Cancer Center: Brain & Spine Center
See especially Brain Cancer and Treatment Information and Life After Cancer Care.
Cancer Care
This national non profit organization provides free professional help to people with all cancers and their families through counseling, education, and financial assistance.
Cancer and Careers
This site provides support and resources for caregivers and cancer patients on how to balance the demands of fighting their illness with the demands of their careers. Although the site is geared for women, it is very informative for all people who are trying to maintain a career while they or someone they love is fighting cancer.
Finding the Money
A Guide to Paying Your Medical Bills - a book available from the Blood and Marrow Transplant Information Network, but not limited to transplant patients. Covers fundraising and financial aid.
Fundraising and Financial Aid
Fundraising and Financial Aid from BMT InfoNet (for bone marrow transplant patients, but applicable for you, too), such as free air transport, travel and housing assistance, and low-cost prescriptions.
Fundraising and Financial Aid
Fundraising and Financial Aid from BMT InfoNet (for bone marrow transplant patients, but applicable for you, too), such as free air transport, travel and housing assistance, and low-cost prescriptions.
Medicare Rights Center
This advocacy organization supports education and resources for those who need help with Medicare-related questions
National Association of Hospital Hospitality Houses, Inc.
National Association of Hospital Hospitality Houses, Inc. is a non-profit corporation serving facilities that provide lodging and other supportive services to patients and their families when confronted with medical emergencies.
Mercy Medical Angels
Mercy Medical Angels removes the barrier to medical care with transportation on the ground and in the air. Since 1972, we’ve provided more than 250,000 trips for patients who couldn’t afford to travel to long-distance healthcare.
NeedyMeds.com
NeedyMeds.com provides information on patient assistance programs, which are designed to help those who can't afford their medicines obtain them at no cost or low cost. The information is obtained directly from the drug manufacturers on a frequent basis.
Patient Advocate Foundation
This non-profit organization serves as a liaison between patients and their insurers, employers, and creditors to ensure access to care, maintain employment and financial stability during a health crisis. The site includes a state by state resource guide with information about housing, utilities, food, medical treatment, home health care, medical devices, and pharmaceuticals. Also, there is state by state information on the appeals process if your insurer is denying coverage, as well as information on the Family Medical Leave Act and disability laws.
OncoLink
OncoLink was the first cancer information website on the Internet, started in 1994, and remains one of the largest. This award-winning site is maintained by a group of oncology healthcare professionals who understand the need of patients, caregivers, and healthcare professionals.