Links
National Brain Tumor Organizations
American Brain Tumor Association
The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis.
The Brain Tumor Foundation
The Brain Tumor Foundation (BTF) guides and supports patients and families during the turbulent times when their lives are touched by a brain tumor.
Brain Tumor Society
Resources for patients, survivors, family, friends and professionals.
Brain Science Foundation
Brain Science Foundation supports basic and clinical research, promising new treatments, and opportunities to improve the quality of patient care. The Brain Science Foundation places a special emphasis on non-cancerous primary brain tumors, such as meningiomas.
Children's Brain Tumor Foundation
This organization provides education and support for the parents and families of children diagnosed with brain tumors and seeks to provide resources for parents to find the best possible care for their child.
National Brain Tumor Foundation
National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners.
Pediatric Brain Tumor Foundation
PBTF's mission of Care. Cure. Thrive. reflects their commitment to curing all pediatric brain tumors and transforming how children and their families are cared for.
Medical and Research Centers
Beth Israel Deaconess Medical Center and Harvard Medical School
The Brain Tumor Center at Beth Israel Deaconess Medical Center and Harvard Medical School provides a multidisciplinary approach and comprehensive care to patients with primary or metastatic central nervous system tumors.
Brigham & Women's Dept. of Neurosurgery
This is where Kimberley was treated by Dr. Peter M. Black. The Brain Tumor Program at Brigham and Women's Hospital and Dana Farber Cancer Institute provides image guided surgery, craniotomy with brain mapping, intraoperative MRI, and skull base surgery.
Cedars-Sinai Health System: Things for Brain Tumor Patients to Be Aware Of
A list of suggestions for dealing with your diagnosis, such as carrying a notebook to appointments, keeping a diary, getting second opinions, and so on.
Colorado Neurological Institute's Center for Brain & Spinal Tumors
CNI's Brain Tumor Team discusses the differing philosophies about brain tumor treatment and describes the latest treatments available.
Duke University Brain Tumor Center
A variety of information and resources from the Duke team led by co-directors Henry Friedman, MD, and Allan Friedman, MD, in Durham, North Carolina.
Johns Hopkins Radiosurgery
Brain Tumor information from Johns Hopkins University Hospital
National Cancer Institute
Type "brain tumor" in the search field to find more information. Go to the NCI Brain Tumor page.
National Institutes of Health
Type "brain tumor" in the search field to find articles from MEDLINE or information on clinical trials, and more from this division of the U.S. Department of Health and Human Services.
NYU School of Medicine - Department of Neurosurgery
NYU Medical Center is one of the major brain tumor treatment centers in the country. This is where Mike was treated by Dr. Patrick Kelly and Dr. Michael Gruber.
NIH Office of Rare Diseases
Brain tumors fall under the classification of "rare disease" because less than 200,000 people are affected with one (that is, if you look by specific pathology such as astrocytoma or glioblastoma). This website covers current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
UCLA Neuro-oncology Program
The UCLA Neuro-oncology Program is a leading comprehensive brain tumor program using molecular diagnostics, gene expression analysis, cutting edge clinical trials and advanced medical informatics to customize treatment plans for cancer patients. Our mission is to provide effective personalized medicine for brain cancer patients.
The University of Texas MD Anderson Cancer Center: Brain and Spinal Center
Brain tumors can be aggressive and challenging to treat, even for experts. MD Anderson’s Anne C. Brooks Brain and Spine Center has nearly 75 years of experience diagnosing and treating brain tumors, spine tumors and skull base tumors. Our world-renowned surgeons, medical oncologists and radiation therapists work together to develop a customized care plan centered on your specific treatment needs.
General Links (not specific to brain tumors)
Tools for Health Care Advance Planning by the American Bar Association
Even if you are not the sick person, talk to your loved ones about your own wishes and what-ifs.
FDA Oncology Tools
Oncology Tools contains a variety of information related to cancer and approved cancer drug therapies. From the U.S. Food and Drug Administration.
Elekta
This site - from the makers of the Gamma Knife - offers an easy to read overview of radiation therapy and gamma knife surgery, as well as a medical glossary and overview of brain tumors. At this site, click on the Patient navigation button at the left.
HealthFinder.gov
HealthFinder.gov a free guide to reliable general health information, by the U.S. Department of Health and Human Services.