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Caregivers

btcaregivers An e-mail listserv for caregivers, this is the only forum where brain tumor caregivers can praise and rail, laugh and fume, feel their whole fear and release their stress without the worry of hurting the loved one for whom they offer care. Just as there are things that patients can only discuss with each other, there are things that caregivers can only truly express to other caregivers. Similar to the BRAINTMR list.

Cancer Care This national non profit organization provides free professional help to people with all cancers and their families through counseling, education, and financial assistance.

Cancer and Careers This site provides support and resources for caregivers and cancer patients on how to balance the demands of fighting their illness with the demands of their careers. Although the site is geared for women, it is very informative for all people who are trying to maintain a career while they or someone they love is fighting cancer.

Getting Support:  Find out about the resources for support that are available to caregivers.

Family Caregivers Alliance: an information center 

bullet Factsheets on Caregiving
bullet Brain Tumor Fact Sheet & Overview
bullet Online Support Groups for Caregivers - subscribe to this listserv

Strength for Caring addresses the complex needs of a person caring for a loved one with cancer. Strength for Caring is a community-based education and support program for caregivers sponsored by Ortho Biotech Products, L.P  with national spokesperson Cindy Crawford. Includes  caregiver resources.

What Caregivers Need From Doctors, by William Lamers, MD, details what you should expect and demand from your doctor. If your doctor doesn't do these things,  ask! This article is a great reminder of how, specifically, to be assertive.

The University of Texas MD Anderson Cancer Center: Brain & Spine Center

See especially Brain Cancer and Treatment Information and Life After Cancer Care. 

 

Support

Meningioma Mommas  A Highlands Ranch, CO-based nonprofit organization, which provides national and international meningioma support with a commitment to raising funds for meningioma specific research.

Patient Advocate Foundation This non-profit organization serves as a liaison between patients and their insurers, employers, and creditors to ensure access to care, maintain employment and financial stability during a health crisis. The site includes a state by state resource guide with information about housing, utilities, food, medical treatment, home health care, medical devices, and pharmaceuticals.  Also, there is state by state information on the appeals process if your insurer is denying coverage, as well as information on the Family Medical Leave Act and disability laws.

Patient Support Groups: links and resources from the National Institutes of Health to help you find support groups.

The Wellness Community is a national nonprofit organization that provides support, education and hope to people with cancer and their loved ones - all programs are free of charge. Through participation in professionally led support groups, educational workshops and mind/body classes utilizing the Patient Active Concept, people affected by cancer learn vital skills that enable them to regain control, reduce isolation and restore hope regardless of the stage of disease. Most importantly, The Wellness Community provides a home-like setting for people fighting cancer to connect with and learn from each other. 

SEE our links to Financial Help

 

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Updated: 29 Sep 2006

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