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Your Brain Tumor Education:

Great websites exist that can help you educate yourself about brain tumors:

On this page: 
 
bulletBrain Tumor Organizations
bulletMedical & Research Centers
bulletGeneral Links
Elsewhere on our site:
 
bulletCaregivers & Support
bulletClinical Trials
bulletFinancial Help
bulletGrief Links
bulletSurvivors
bulletBooks

Our Top Pick:

Clinical Trials and Noteworthy Treatments for Brain Tumors

VirtualTrials.com is a very comprehensive brain tumor information site. For example, see the comprehensive list of mailing list support groups, such as BRAINTMR.

National Brain Tumor Organizations:

American Brain Tumor Association

bulletThe Primer: A beginnerís guide to brain tumors
  
bulletABTA Kids An area just for kids with learning, sharing, activities and volunteer areas.

The Brain Tumor Foundation This site was started by a neurosurgeon, Dr. Patrick Kelly (who was Mike's neurosurgeon). It contains great information and a brain tumor survival manual.

Brain Tumor Society Resources for patients, survivors, family, friends and professionals.

Brain Science Foundation supports basic and clinical research, promising new treatments, and opportunities to improve the quality of patient care. The Brain Science Foundation places a special emphasis on non-cancerous primary brain tumors, such as meningiomas.

Children's Brain Tumor Foundation This organization provides education and support for the parents and families of children diagnosed with brain tumors and seeks to provide resources for parents to find the best possible care for their child.

National Brain Tumor Foundation

bulletClick on the "Join Us for Free" button to sign up for their quarterly newsletter, Search
 
bulletClick on "What's New" to find out about regional conferences

North American Brain Tumor Coalition (NABTC) is a network of charitable organizations dedicated to eradicating brain tumors. The Coalition represents the interests of its combined constituency by raising awareness of the problem and by advocating for increased research funding, health care, and other issues affecting brain tumor patients.

Pediatric Brain Tumor Foundation of the United States whose goal is to create awareness across America about this growing disease.
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Medical and Research Centers

By no means are these the ONLY medical centers to treat or research brain tumors, but are  good websites that provide more information.

Beth Israel Deaconess Medical Center and Harvard Medical School  The Brain Tumor Center at Beth Israel Deaconess Medical Center and Harvard Medical School provides a multidisciplinary approach and comprehensive care to patients with primary or metastatic central nervous system tumors.

Brigham & Women's Dept. of Neurosurgery This is where Kimberley was treated by Dr. Peter M. Black. The Brain Tumor Program at Brigham and Women's Hospital and Dana Farber Cancer Institute provides image guided surgery, craniotomy with brain mapping,  intraoperative MRI,  and skull base surgery. 

Cedars-Sinai Health System: Things for Brain Tumor Patients to Be Aware Of  A list of suggestions for dealing with your diagnosis, such as carrying a notebook to appointments, keeping a diary, getting second opinions, and so on.

Colorado Neurological Institute's Center for Brain & Spinal Tumors CNI's Brain Tumor Team discusses the differing philosophies about brain tumor treatment and describes the latest treatments available. 

Duke University Brain Tumor Center. A variety of information and resources from the Duke team led by co-directors Henry Friedman, MD, and Allan Friedman, MD, in Durham, North Carolina.

Edward B Arenson, MD is a neuro-oncologist in Colorado who believes even malignant brain tumors can be cured with an early, aggressive approach to treatment. This is his personal neuro-oncology practice website.  He is also co-director of the Colorado Neurological Institute's Center for Brain & Spinal Tumors.

Johns Hopkins Radiosurgery Brain Tumor information from Johns Hopkins University Hospital.

Brain-Tumor.com - allows patients and families to view the symptoms, treatments and outcomes of treatments. Provided by Johns Hopkins.

Memorial Sloan Kettering "Just Diagnosed - Brain Tumor" page offers a variety of information to the newly diagnosed.

National Cancer Institute Type "brain tumor" in the search field to find more information. Go to the NCI Brain Tumor page.

National Institutes of Health Type "brain tumor" in the search field to find articles from MEDLINE or information on clinical trials, and more from this division of the U.S. Department of Health and Human Services. 

NYU School of Medicine - Department of Neurosurgery NYU Medical Center is one of the major brain tumor treatment centers in the country.  This is where Mike was treated by Dr. Patrick Kelly and Dr. Michael Gruber.

NIH Office of Rare Diseases Brain tumors fall under the classification of "rare disease" because less than 200,000 people are affected with one (that is, if you look by specific pathology such as astrocytoma or glioblastoma). This website covers current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.

UCLA Neuro-oncology Program

The University of Texas MD Anderson Cancer Center: Brain and Spinal Center

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General Links (not specific to brain tumors)

Now You Have a Diagnosis: Whatís Next?  This resource will help you to use research and other information to make the best treatment decisions for you (from the Agency for Healthcare Research and Quality). 

Tools for Health Care Advance Planning by the American Bar Association. Even if you are not the sick person, talk to your loved ones about your own wishes and what-ifs.

CanadaRX When you don't have insurance coverage for prescriptions (if you're on Medicare, for example), you can get the same medicine for a lot less money. Tamoxifen is one that's available for nearly 10 times less money than in the U.S.

FDA Oncology Tools Oncology Tools contains a variety of information related to cancer and approved cancer drug therapies. From the U.S. Food and Drug Administration. 

Elekta This site - from the makers of the Gamma Knife - offers an easy to read overview of radiation therapy and gamma knife surgery, as well as a medical glossary and overview of brain tumors. At this site, click on the Patient navigation button at the left.

HealthFinder.gov a free guide to reliable general health information, by the U.S. Department of Health and Human Services.

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Updated: 29 Sep 2006

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