Coping with a brain tumor is hard enough without having to deal with insurance companies, disability claims, and finding the money to pay for treatments or travel. Here are some resources that can help:
Social Security booklets
CanadaRX - When you don't have insurance coverage for prescriptions (if you're on Medicare, for example), you can get the same medicine for a lot less money by mail. Tamoxifen is one that's available for nearly 10 times less money than in the U.S.
Cancer Care This national non profit organization provides free professional help to people with all cancers and their families through counseling, education, and financial assistance.
Cancer and Careers This site provides support and resources for caregivers and cancer patients on how to balance the demands of fighting their illness with the demands of their careers. Although the site is geared for women, it is very informative for all people who are trying to maintain a career while they or someone they love is fighting cancer.
Finding the Money: A Guide to Paying Your Medical Bills - a book available from the Blood and Marrow Transplant Information Network, but not limited to transplant patients. Covers fundraising and financial aid.
Fundraising and Financial Aid from BMT InfoNet (for bone marrow transplant patients, but applicable for you, too), such as free air transport, travel and housing assistance, and low-cost prescriptions.
Medicare Rights Center This advocacy organization supports education and resources for those who need help with Medicare-related questions
National Association of Hospital Hospitality Houses, Inc. is a non-profit corporation serving facilities that provide lodging and other supportive services to patients and their families when confronted with medical emergencies.
National Patient Travel Helpline is a service of the which provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Or call 1-800-296-1217.
NeedyMeds.com provides information on patient assistance programs, which are designed to help those who can't afford their medicines obtain them at no cost or low cost. The information is obtained directly from the drug manufacturers on a frequent basis.
Patient Advocate Foundation This non-profit organization serves as a liaison between patients and their insurers, employers, and creditors to ensure access to care, maintain employment and financial stability during a health crisis. The site includes a state by state resource guide with information about housing, utilities, food, medical treatment, home health care, medical devices, and pharmaceuticals. Also, there is state by state information on the appeals process if your insurer is denying coverage, as well as information on the Family Medical Leave Act and disability laws.
Patient Travel and Lodging Assistance (NIH Office of Rare Diseases) Includes direct links to many charitable or special fare flights to research and treatment sites. Also links to hotels, motels and other lodging near medical centers.
Financial resources for patients from Oncolink - University of Pennsylvania Cancer Center